25 May 2022

Understanding rare disease: communicating with patients

Jo McPherson daretothinkrare, M4RD, M4RD Events, M4RD Learn, medicalstudent, Rare Disease 101 Find The One In 17, HCPs, I am number 17, M4RD, medical education, medical student, rare disease

M4RD is delighted to announce that we will be hosting an interactive virtual event exclusively for medical students wishing to learn more about complex communication skills. This event is initiated by Takeda UK, run together with M4RD as part of the I am Number 17 Campaign.

The virtual event will take place on Wednesday 8th June (14:00 – 15:45). It will explore the vital role of effective communication and depth of understanding when it comes to handling and dealing with rare disease.

The event will kick off with an exciting session from our guest speaker, who will explore the significance of sensitive communication skills when it comes to handling complex conditions, such as rare disease. Attendees will then have the chance to speak with some of the I am Number 17 campaign changemakers. They will hear first-hand about how their diagnostic odysseys came to an end, through perseverance and working together with the help of their HCP/Consultants.

What will you get from attending this event?

Gain experience from communicating directly with those affected by rare disease
Improve your understanding of rare disease and how to react when faced with a potential patient living with a rare disease
Develop your communication skills, notability how to share sensitive information and break bad news
Gain a certificate of attendance to exhibit your enhanced learning

We hope that learning from real-life examples will provide you with tangible learnings to take along your medical careers and ultimately equip you to Find the 1 in 17 in the future.

All medical students are welcome to attend this event, which may be beneficial for students preparing for upcoming OSCE examinations.

To attend the free event and find out more, please sign up and register here.

Rare Disease 101

Phase 3 is all about asking HCPs to help #FindThe1In17 by considering rare disease for every unsolved illness they see. We’re reaching out to healthcare professionals to share information on rare disease and to take part in Rare Disease 101, our fast, free online platform that provides simple information and case-study led education to help Find the 1 in 17.

The I Am Number 17 campaign was initiated and funded by Takeda.