Alternating Hemiplegia of Childhood UK
Patient Groups / by Eleanor Churchill / 26 views / New
Alternating Hemiplegia of Childhood (AHC) UK in a UK charity for those living with or caring for an individual with AHC.
Our main page of the website has a contact us form for any newly diagnosed people and we can also connect you with other families or become part of our closed support group on facebook.
We also have a public facebook profile
We would like to share our website below which includes a number of resources and links for patients, carers and healthcare professionals including:
Our Chair co-wrote the information leaflet for carers, people with the disease and healthcare professionals with the European AHC expert as part of the EpiCARE (European Rare Complex Epilepsy network) and this can be useful for those living with or caring for an individual with AHC.
We have done a video with Professor Sanjay Sisodiya (our charity medical director) which has a good overview/explanation of the disease. https://youtu.be/Ndt7oFo_QtI
We also have our AHC UK YouTube channel where we upload all our videos:
https://www.youtube.com/channel/UCq92OHi55xlSZaFukNB0Vdw
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