Jo McPherson

About Jo McPherson

Posts by Jo McPherson:

21st January 2020

Winner of Student Voice Prize 2019 Announced

Jo McPherson competition, daretothinkrare, findacure, medicalstudent, patient, raredisease

Medical Students asked to “Think Rare” Rare diseases affect approximately 350 million people worldwide, yet they are some of the most difficult conditions to diagnose. Despite the number of people […]

2nd October 2019

Medics4RareDiseases Launches New Branding

Jo McPherson branding branding, collaboration, launch, zebra

In September 2019 Medics4RareDiseases launched new branding with the help of healthcare communications agency emotive We have always wanted to keep our brand approachable while at the same time honouring […]

2nd October 2019

A Puff of Smoke

Jo McPherson disease, event, patient book launch, event, exhibition, patient, rare disease, workshop

Sarah Lippett spent eleven years suffering with symptoms from an unknown condition, until she was diagnosed with the rare disease, Moyamoya, at the age of 17. This November she is […]

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26th September 2019

Intracranial Hypotension Symposium 2020 Attendance Bursary

Jo McPherson Uncategorised bursary, CSF Leak, junior doctor, symposium

We are delighted to be working with the CSF Leak Association who are currently offering a bursary to support a UK-based junior doctor to travel to, and attend, the 3rd annual Intacranial Hypotension Symposium on 8th February 2020 in Los Angeles.

22nd August 2019

Interested in studying a childhood rare disease or condition?

Jo McPherson Uncategorised BPSU, bursary, children, rare diseases, RCPCH, study

Each year the British Paediatric Surveillance Unit (BPSU) invite paediatricians planning a surveillance study to apply for this bursary. The successful applicant receives a free slot on the BPSU Orange […]

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12th August 2019

‘The Suspense is Killing Me’ is launched to help find answers for children suffering from rare or undiagnosed diseases.

Jo McPherson daretothinkrare, disease, Family support, patient, raredisease, Research children, Family support, rare disease, undiagnosed

Project Y’s mission is to find answers for children with rare diseases, helping to find answers for thousands of families who desperately need them. Project Y supports advancing initiatives such […]

15th July 2019

Childhood Tumour Trust Appoints New Medical Advisory Board Members

Jo McPherson Ambassador, conference, medicalstudent, raredisease medical student. medical advisory board, neurofibromatosis, NF1, rare disease, volunteer

Earlier this year M4RD helped Childhood Tumour Trust (CTT) search for a doctor to attend the International Neurofibromatosis Conference in San Francisco this September. The successful applicant would also join CTT’s medical […]

2nd June 2019

The Diagnostic Odyssey – A Mother’s Experience

Jo McPherson congenital, daretothinkrare, disease, interview, patient CSID, Deficiency, diagnosis, Diagnostic odyssey, Diet, Enzyme, Enzyme deficiency, Gastroenterology, Mother, Nutrition, rare, rare disease, Rare reality, Sugar

The diagnostic odyssey is a term used to describe the long and arduous journey that many rare disease patients find themselves on in pursuit of a diagnosis. The charity, Rare […]

29th May 2019

Neurofibromatosis Type 1

Jo McPherson disease, raredisease, Research doctor, doctor in training, medical student, medicine, neurofibromatosis, NF1, rare disease

The most common of the Neurofibromatoses, Neurofibromatosis Type 1 (NF1) is a condition that leads to tumors growing on nerves alongside effects on other organs. It affects approximately 1 in 2700 births, and can be due to autosomal dominant inheritance from the parents or new mutations in the gene NF1 in the affected child.