Medics For Rare Disease – New Year, New Strategy
9th January 2025 Medics4RareDiseases is evolving. We are excited to announce a refresh of our strategy, a relaunch of our branding and even a new name! The charity has grown […]
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Attending NORD! (The National Organisation for Rare Diseases) by Agata Oliwa
I had the amazing opportunity to attend the National Organization for Rare Diseases (NORD) Breakthrough Summit taking place in Washington, DC, USA between 20-22nd of October this year to present […]
Beyond the Diagnosis: Mental Health and Rare Diseases
For millions with rare diseases, the journey to understanding and managing their condition can be as challenging as the diagnosis itself. Rare diseases are more common than many realise – […]
Greetings from the South, Reunions in the ‘North’, and The Power of Yet
Joining M4RD: A New Chapter as Strategic Operations Manager by Katie Sutton I recently joined M4RD as the new Strategic Operations Manager, and it’s been an interesting journey so far! […]
M4RD’s Rare Diseases 101 Study
Published in the Orphanet Journal of Rare Diseases Medics4RareDiseases is proud to announce another publication within the Orphanet Journal of Rare Diseases! The study evaluates Rare Diseases 101, an online […]
Lunch and Learn look-back by Leah Brooksbank and Corrinne Hepworth
Our ambassadors Leah Brooksbank and Corrinne Hepworth attended M4RD’s lunch and learn session recently where they discussed their time at M4RD so far and also heard from a variety of […]
Hello from M4RD’s new Training Programme Manager
July was a busy month for M4RD, and marked my first couple of weeks with the team as Training Programme Manager! The capital of the north! Just a few days […]
STUDY IDENTIFIES RED FLAGS OF RARE DISEASE
Published in Orphanet Journal of Rare Diseases 21st May 2024: A new study, by Medics4RareDiseases, has identified seven ‘red flags, or clinical clues, that point to a patient having an […]
My time working for Medics4RareDiseases by Nadine Jefferies
After an incredible year and half, I have decided to move on from working at Medics4RareDiseases. But before I go, I’d like to look back on my time at this […]
The Unusual Suspects – A Masterclass In Rare Disease Communication by John Bassett
As a new clinical ambassador for M4RD, I eagerly anticipated the Unusual Suspects conference in London this year, and it certainly didn’t disappoint! Traveling from Chester donning my stripy socks, […]