We healthcare practitioners are privileged. Patients trust us with their stories, creating the space for us to participate in them. In my experience as a genetic counselling student, this is […]
Medics4RareDiseases and FOP Friends, in collaboration with the Hunterian Museum at the Royal College of Surgeons of England, hosted an evening reception for healthcare professionals, examining the contributions of patients […]
We are thrilled to announce a major development in rare disease education for healthcare professionals: four knowledge summaries were published to NHS England’s GeNotes before Rare Disease Day 2024, authored […]
Many people with a rare disease will tell you that it took years to get diagnosed, with an average time for diagnosis taking between 4 and 6 years. During this […]
Whilst we wait to hear who the winner and runner’s up are from The Student Voice Prize, we hear from Toni Oduwole who was one of the students paired in […]
JOIN US AT THE HUNTERIAN MUSEUM! Join Medics4RareDiseases and FOP Friends for a unique reception, at the prestigious Hunterian Museum, at the Royal College of Surgeons of England on 13th […]
Medics4RareDiseases is excited to announce that you can now register for our 11th annual symposium! The Unusual Suspects 2024: Rare Diseases in Everyday Medicine will take place on the afternoon […]
Last week myself and Dr Grace Knight, clinical ambassador for M4RD, got the chance to attend the All-Party Parliamentary Group (APPG) launch of the report ‘Where are our nation’s donors?’, […]
Would you like to join our team? As the Operations and Finance Manager you will manage the operational core of M4RD, ensuring we have the right size internal systems, processes […]
This week, Mystery Monday focussed on Creutzfeldt-Jakob Disease (CJD) and prion disease with thanks to The CJD Support Network UK for the fantastic resources. Creutzfeldt-Jakob Disease (CJD) is an exceedingly […]
