M4RD are proud sponsors of T-KASH
Medics4RareDiseases are proud to be a bronze sponsor for T-KASH: Transition – Knowledge and Skills in Healthcare, a new tool designed to support young people with rare and genetic conditions […]
m4rd
About m4rd
Posts by :
M4RD end of year summary by Alexandra Downes
This year, I was able to combine my role as an M4RD Clinical Ambassador with my position on the London School of Paediatrics Trainee’s Committee Education Subgroup to work together […]
M4RD’s Ambassadors come together for the first time
M4RD’s Ambassadors come together for the first time In September 2022 we welcomed our new cohort of ambassadors for 2022/23 which included 10 Clinicians, 5 Medical Students and 4 Patient […]
New Online Course for Medics Launched Today Which Explores Mental Health and Rare Disease
Medics4RareDiseases (M4RD) has today launched a new online course, ‘Mental Health and Rare Disease’. Consisting of 8 interactive lessons; each focuses on a different topic related to the challenges that […]
Changing attitudes to blood and organ donation – Action on Blood’s film-screening at the House of Commons by Nadine Jefferies
We may have all heard the phrase “save a life, give blood”, but what we may not have heard about is the cultural disparity that exists in blood and organ […]
Are you ready to become a Rare Disease Ally?
Apply to be an M4RD Ambassador today… Our Ambassador Programme is now open to new applications – this is your chance to become an M4RD Ambassador and a rare disease […]
The Importance of Centering the Patient by Nadine Jefferies
How can pharmaceutical companies ensure that patients are actively involved at every stage ofdrug development? Last week I attended the Patient Centricity & Engagement conference in London to find out […]
Get involved with a research study
Are you a medical student? Are you undertaking work involving rare diseases? Your opinions could be invaluable for a research study looking into rare disease advocacy! What is it for? […]
CMTC – More Than Just a Bruise
by Nadine Jefferies The moments after a baby is born – already a rollercoaster of emotions for any parent –are only amplified if your baby has a rare condition. Lex […]
Advanced Therapies Conference at the ExCel in London by Nadine Jefferies
Hello, Nadine here, I’m back again! This time it’s to talk about rare disease policy. This month I attended Europe’s largest cell and gene therapy exhibition at the ExCel Centre.Among […]