Hello, Nadine here, I’m back again! This time it’s to talk about rare disease policy. This month I attended Europe’s largest cell and gene therapy exhibition at the ExCel Centre.Among […]
Hello! I’m Nadine, Executive Assistant at Medics4RareDiseases, and I’m thrilled to tell you about my trip to Brussels with CEO Lucy McKay. On the 8th February we visited the European […]
Thanks so much to everyone for getting involved with this year’s Rare Disease Day! It’s been amazing how many of you have shown your stripes and they all look fantastic! […]
Happy Rare Disease Day! We can finally reveal the special segment recorded with Medscape for Rare Disease Day. We would like to thank everyone involved in making this happen, it […]
With my head hung down, trying to hide my morning face away from the scurry of staff hurrying between the shift changeover, I scan the floor for those familiar patterns; […]
Medics4RareDiseases is thrilled to partner with Medscape Education, a global education website for medics, to produce a film with ITN. The programme, that will be released on Rare Disease Day […]
On Tuesday Lucy was invited to present alongside Sioned Preece at the UK Astrazeneca conference held at the Intercontinental right next to the O2 in North Greenwich! Astrazeneca has recently […]
by Dr Alexandra Downes, Paediatric Registrar My Rare Disease journey began in the second year of my Human Genetics degree at University College London. I still remember to this day […]
We are back at The Royal Society of Medicine in London for our annual symposium held in conjunction with the wonderful Genetics Section. We are looking forward to bringing you rare […]
