Beyond the Diagnosis: Mental Health and Rare Diseases
For millions with rare diseases, the journey to understanding and managing their condition can be as challenging as the diagnosis itself. Rare diseases are more common than many realise – […]
Ambassador
Lunch and Learn look-back by Leah Brooksbank and Corrinne Hepworth
Our ambassadors Leah Brooksbank and Corrinne Hepworth attended M4RD’s lunch and learn session recently where they discussed their time at M4RD so far and also heard from a variety of […]
Are you ready to become a Rare Disease Ambassador?
Apply to be an M4RD Ambassador today… This is the moment you’ve been waiting for! Our popular and successful Ambassador Programme is now open to new applications, giving you the […]
The Unusual Suspects – A Masterclass In Rare Disease Communication by John Bassett
As a new clinical ambassador for M4RD, I eagerly anticipated the Unusual Suspects conference in London this year, and it certainly didn’t disappoint! Traveling from Chester donning my stripy socks, […]
My journey applying for the Student Voice Prize by Diya Porwal
We healthcare practitioners are privileged. Patients trust us with their stories, creating the space for us to participate in them. In my experience as a genetic counselling student, this is […]
Words Matter by Emily Livesey
Words that hurt It’s 2009 and my body is failing me. I had a flu that I never got over and it has left me weak,nauseous, breathless, and ravenously hungry. […]
M4RD end of year summary by Alexandra Downes
This year, I was able to combine my role as an M4RD Clinical Ambassador with my position on the London School of Paediatrics Trainee’s Committee Education Subgroup to work together […]
M4RD’s Ambassadors come together for the first time
M4RD’s Ambassadors come together for the first time In September 2022 we welcomed our new cohort of ambassadors for 2022/23 which included 10 Clinicians, 5 Medical Students and 4 Patient […]
Are you ready to become a Rare Disease Ally?
Apply to be an M4RD Ambassador today… Our Ambassador Programme is now open to new applications – this is your chance to become an M4RD Ambassador and a rare disease […]
The M4RD Ambassador 6 Month Round up
We can’t quite believe that it’s been (just over) six months since our 2022/23 cohort joined us – and what a journey it’s been with SO many wonderful activities being […]