daretothinkrare

11th May 2022

Westminster, Rare Collaboration and Rare Diseases Action Plan 2022

Emma Huskinson daretothinkrare, doctor, M4RD, Patient Advocacy Groups, Report, UK Rare Disease Framework collaboration, LSD Collaborative, M4RD, MPS, Rare Diseases Action Plan, Westminster

Last Monday I attended a reception at the House of Commons to celebrate the 40th anniversary of the Society for Mucopolysaccharide Disease, or MPS. MPS is a member of the […]

3rd February 2022

Introducing Phase 3 of the #IAmNumber17 campaign

Jo McPherson daretothinkrare, disease, interview, patient, raredisease Changemakers, Find The One In 17, HCPs, Healthcare providers, I am number 17, rare disease

M4RD is proud to be collaborating on Phase 3 of the I am number 17 campaign in order to reach a vital audience who can make a huge difference to those […]

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26th November 2021

Become an M4RD Ambassador and a Rare Disease Ally

Jo McPherson Ambassador, daretothinkrare, doctor, M4RD, medicalstudent, patient Ambassador, Clinical Ambassador, doctor in training, M4RD Ambassador, medical student, Patient Ambassador, rare disease

Our Ambassador Programme is now open to new applications – this is your chance to become an M4RD Ambassador and a rare disease ally! About our programme Our ambassador programme […]

5th November 2021

Syndromes without a name (SWAN)

Emma Huskinson daretothinkrare, disease, Mystery Disease Monday, Patient Advocacy Groups, raredisease dare to think rare, Diagnostic odyssey, SWAN UK, syndromes without a name, undiagnosed

It’s my first blog post for M4RD and I have been thinking back to when I was first introduced to the field of rare diseases, whilst in Med School. At […]

29th September 2021

Not your usual heart attack

Jo McPherson daretothinkrare, disease, interview, medicalstudent, patient, raredisease, Uncategorised diagnosis, Heart, medical education, patient voice, rare disease, SCAD, Spontaneous Coronary Artery Dissection

Heart attacks may not be rare but SCAD is! Today is World Heart Day and although heart attacks may not be rare, there are other causes of heart attacks that […]

15th July 2021

Rare Disease 101: How it all began

danjeffries daretothinkrare, disease, Rare Disease 101 doctors in training, interactive course, M4RD, medical students, medics4rarediseases, online medical education, Rare Disease 101, RD101

The idea behind Rare Disease 101 When the idea of Rare Disease 101 was first mooted by Lucy McKay, my (slightly wonky) heart skipped a beat. I had been a […]

25th June 2021

Reflections on rare diseases: state of the nation 2021

Jo McPherson daretothinkrare, disease, raredisease, Report Baroness Blackwood, Public policy projects, rare disease, reflections on rare diseases, Report, State of the nation

Starting a conversation Back in 2019, Baroness Blackwood spoke at the British Paediatric Surveillance Unit (BPSU) rare disease summer tea party where she stated “we need national debate on rare […]

11th June 2021

Working together to share our message #DareToThinkRare

Jo McPherson daretothinkrare, patient, Patient Advocacy Groups, raredisease collaboration, daretothinkrare, patient advocacy, patient advocates, patient groups, Patients

We believe that asking doctors to #DareToThinkRare is fundamental to improving the experience of all patients living with rare diseases. And to eliminating the diagnostic odyssey. Working together to share […]

2nd June 2021

Thank you to our sponsors for supporting our work programme

Jo McPherson daretothinkrare, Rare Disease 101, raredisease, sponsors collaboration, M4RD, medics4rarediseases, RD101, sponsors, work programme

We would like to thank all our sponsors and donors for their generous support of M4RD’s 2021 work programme that includes further development of Rare Disease 101 and gathering data […]

20th May 2021

The Unusual Suspects: rare disease in everyday medicine

Jo McPherson conference, daretothinkrare, event, M4RD Events, Video collaboration, dare to think rare, emotive, M4RD, medical education, rare disease, royal society of medicine, the unusual suspects

emotive Reviews ‘The Unusual Suspects’ M4RD has continued to work closely with emotive – an independent, award winning global healthcare communications agency. Emotive were greatly involved in helping us bring […]