Mystery Disease Monday is back #MDM
You spoke and we listened!! We are pleased to announce that Mystery Disease Monday will be back from Monday 17th May and to mark the start of National Eosinophilic Awareness […]
daretothinkrare
Rare Disease 101 fills the gap in medical education
Written by Dr Thomas Dunne, Trust Grade SHO in Paediatrics & M4RD Clinical Ambassador When reflecting on your experiences of undergraduate medical education on rare diseases, what comes to mind? […]
I am number 17 campaign
This week changemaker David Rose speaks with our CEO Lucy about what it is like to live with the ultra-rare disease occipital horn syndrome, advocacy efforts and the I am number 17 […]
Rare Disease 101 is LIVE!
Rare Disease 101 Today Medics4RareDiseases has launched its online, interactive e-learning platform dedicated to teaching medics the fundamentals of rare disease and help them manage both their undiagnosed and diagnosed […]
Rare Disease 101 Sneak-Peek
Rare Disease 101 Today Medics4RareDiseases has realised a long-term goal: we have created Rare Disease 101 training for medical professionals. RD101 is an online and interactive education module created for […]
Rare Disease – Not Just For Specialists
Written by Dr Katherine Colvin, European Medical Journal (EMJ) Rare diseases are individually rare, but collectively common. Rare diseases, each occurring in fewer than 1 in 2,000 people (EU definition1), affect 3.5–5.9% […]
Announcing the launch of the 7th annual Student Voice Prize
The Student Voice Prize is back for its 7th year with a new website and logo! The Student Voice Prize is an annual international essay competition brought to you by M4RD in collaboration […]
The Unusual Suspects 2020 – Rare diseases in everyday medicine
In February 2020, a month before lockdown in the UK, we held our annual symposium at The Royal Society of Medicine for the sixth year. ‘The Unusual Suspects: Rare diseases […]
Similarities & Differences in Genetic Counselling in the UK and South Africa
Melissa Clasen, genetic counsellor, has recently moved from South Africa to work in London. In this article she discusses some of the unique differences in access to care, support and […]
New Online Tool for Assessing COVID-19 Risk in People With Rare Genetics Diseases
UCL Great Ormond Street Institute of Child Health has responded to the considerable anxiety and confusion among many people living with rare diseases about their level of risk from COVID-19 and the […]