M4RD

28th July 2022

M4RD’s annual strategy meeting

Jo McPherson M4RD, Video M4RD, OGSM, strategy, trustees

Last week our CEO and trustees met for M4RD’s annual strategy meeting in Gloucestershire. This was an opportunity to reflect on our progress over the last 12 months and to […]

30th June 2022

What seems to be the problem?

Jo McPherson daretothinkrare, doctor, M4RD, raredisease doctors, ED, emergency department, medical student, rare disease

Grace Knight studied medicine at Keele University and is about to become an F1 in Coventry. Her passion for improving rare disease education was sparked by her younger brothers’ rare […]

9th June 2022

Rare Diseases Action Plan – Actions 8 & 9

Emma Huskinson M4RD, raredisease, Report, UK Rare Disease Framework HCP, M4RD, medical education, rare disease, Rare Diseases Action Plan

This is the third instalment of M4RD’s comments on the English Rare Diseases Action Plan. I will now discuss Action 8; Extend the remit of the Genomics Education Programme to […]

31st May 2022

Rare Diseases Action Plan Focus on Action 6

Emma Huskinson M4RD, raredisease, Report, UK Rare Disease Framework HCP, medical education, rare disease, Rare Diseases Action Plan

In this post Emma will focus on Action 6 of the England Rare Disease Action Plan; develop an innovative digital educational resource. This is the first action listed in the Plan […]

26th May 2022

Rare Disease Action Plan 2022 – focus on priority 2, action 7

Emma Huskinson M4RD, Report, UK Rare Disease Framework HCP, M4RD, medical curriculum, medical education, rare disease, Rare Diseases Action Plan, undergraduate

In my last post I introduced some of M4RD’s initial thoughts on the Rare Diseases Action Plan 2022 Action 6. Now I’d like to continue exploring Priority 2; ‘increasing awareness […]

25th May 2022

Understanding rare disease: communicating with patients

Jo McPherson daretothinkrare, M4RD, M4RD Events, M4RD Learn, medicalstudent, Rare Disease 101 Find The One In 17, HCPs, I am number 17, M4RD, medical education, medical student, rare disease

M4RD is delighted to announce that we will be hosting an interactive virtual event exclusively for medical students wishing to learn more about complex communication skills. This event is initiated […]

19th May 2022

It’s not ‘just hypermobility’

Melissa Clasen daretothinkrare, disease, M4RD, Mystery Disease Monday, Patient Advocacy Groups, Podcast, raredisease Annabelle's Challenge, Ehlers Danlos, genetic, Hypermobility, M4RD, VEDS

Ehlers Danlos Syndrome (EDS) refers to a group of conditions that affects connective tissues, which includes skin, bones, blood vessels and many other organs. Symptoms of Ehlers Danlos Syndrome can […]

11th May 2022

Westminster, Rare Collaboration and Rare Diseases Action Plan 2022

Emma Huskinson daretothinkrare, doctor, M4RD, Patient Advocacy Groups, Report, UK Rare Disease Framework collaboration, LSD Collaborative, M4RD, MPS, Rare Diseases Action Plan, Westminster

Last Monday I attended a reception at the House of Commons to celebrate the 40th anniversary of the Society for Mucopolysaccharide Disease, or MPS. MPS is a member of the […]

5th April 2022

M4RD joins forces with Bionical Emas to launch new online training

Jo McPherson M4RD, M4RD Learn, medicalstudent, Rare Disease 101, raredisease Bionical Emas, Clinical research, clinical trials, Early access programmes, M4RD, rare disease

Medics4RareDiseases (M4RD) is happy to announce it has collaborated with Bionical Emas, a global Contract Research Organisation, to launch new online training for healthcare professionals. The mini-module is comprised of […]

30th March 2022

Fifty Years For a Fibular Hemimelia Diagnosis

Melissa Clasen interview, M4RD, patient, Podcast congenital, diagnosis, fibula hemimelia, medical education, rare disease

Fibular Hemimelia is a rare congenital condition characterised by the complete or partial absence of the fibula bone. It is the same condition which afflicted athletes Aimee Mullins and Oscar […]