History, Examination, Investigation, Diagnosis…?
I must admit that, until recently, I hadn’t really given much thought to the issues surrounding rare diseases. When studying for exams, I dutifully learnt what I thought were all the steps in managing various conditions.
Dr Lucy McKay becomes the new (and first ever) Chief Executive Officer of Medics4RareDiseases.
Medics4RareDiseases are excited to announce the launch of their new research project: The M4RD Red Flags Survey. The purpose of the survey is to find out what different rare diseases have in common during the time before diagnosis, a period often called ‘the diagnostic odyssey’. We need all UK based patient groups to take part. Read more to find out how…
This week a brilliant campaign was launched to raise awareness of childhood dementia
VIDEO: Dan Jeffries, owner of two rare diseases and author of ‘Me, Myself & Eye’, interviewed M4RD Founder Lucy McKay. Watch the video to hear Dan’s interesting story of being diagnosed during an OSCE and to find out what M4RD is all about from the zebra’s mouth.
Another brilliant Rare Disease Day. This year we rebranded to Medics4RareDiseases!
Students4RareDiseases are excited to announce that on Rare Disease Day this year we are changing to Medics4RareDiseases