Uncategorised

25th June 2019

Medics4RareDiseases becomes a UK Registered Charity

Lucy McKay Uncategorised Charity, Charity Commission, Diagnostic odyssey, funding, fundraising, health, healthcare, medical education, medical school, rare disease, sickness, sponsorship

Medics4RareDiseases registered as a UK charity who’s object is the relief of sickness and preservation of health of those suffering from rare diseases.

10th November 2018

#DareToThinkRare and Save Lives

Lucy McKay Uncategorised

The tragic death of Elliot reminds us that knowing about rare diseases doesn’t just improve the patient journey but it can save lives in emergency situations. Find out more about Elliot and urea cycle disorders.

22nd October 2018

The Changing Face of Fibromuscular Dysplasia

Lucy McKay Uncategorised

Our understanding about fibromuscular dysplasia is evolving. Find out more about this under-diagnosed and serious condition from Dr Tina Chrysochou, Consultant Nephrologist.

3rd October 2018

How one medical student learned to #DareToThinkRare

Lucy McKay Uncategorised

History, Examination, Investigation, Diagnosis…?

I must admit that, until recently, I hadn’t really given much thought to the issues surrounding rare diseases. When studying for exams, I dutifully learnt what I thought were all the steps in managing various conditions.

27th September 2018

M4RD Welcome a New CEO

Lucy McKay Uncategorised

Dr Lucy McKay becomes the new (and first ever) Chief Executive Officer of Medics4RareDiseases.

24th July 2018

The M4RD Red Flags Survey Launches Today!

Lucy McKay Uncategorised education, M4RD red flags survey, med student, medical education, medical student, medicine, rare disease, red flags, red flags of rare disease, research, survey

Medics4RareDiseases are excited to announce the launch of their new research project: The M4RD Red Flags Survey. The purpose of the survey is to find out what different rare diseases have in common during the time before diagnosis, a period often called ‘the diagnostic odyssey’. We need all UK based patient groups to take part. Read more to find out how…

31st May 2018

Spontaneous Coronary Artery Dissection (SCAD)

Lucy McKay Uncategorised chest pain, emergency medicine, heart attack, medical education, medical school, medical student, medicine

Not your typical heart attack patient

11th April 2018

Dementia Strikes Children Too

Lucy McKay Uncategorised awareness, Battens, campaign, childhood, dementia, MPS, Niemann-Pick, patient, rare disease

This week a brilliant campaign was launched to raise awareness of childhood dementia

7th March 2018

When Dan Met Lucy on Rare Disease Day 2018

Lucy McKay Uncategorised acromegaly, awareness, Clinical examination, doctor, endocrine, foundation doctors, med school, med student, medical, medical education, medical school, medical student, medicine, opthalmology, OSCE, rare, rare disease, rare disease day

VIDEO: Dan Jeffries, owner of two rare diseases and author of ‘Me, Myself & Eye’, interviewed M4RD Founder Lucy McKay. Watch the video to hear Dan’s interesting story of being diagnosed during an OSCE and to find out what M4RD is all about from the zebra’s mouth.

6th March 2018

Rare Disease Day 2018

Lucy McKay Uncategorised awareness, diagnosis, doctor, doctor in training, doctors in training, foundation doctors, med school, med student, medical, medical education, medical school, medical student, medicine, paediatrics, rare, rare disease, Training

Another brilliant Rare Disease Day. This year we rebranded to Medics4RareDiseases!