Soft UK Healthcare Professionals Seminar
SOFT UK invites healthcare professionals to a transformative seminar focused on the power of language in supporting families navigating rare genetic diagnoses and ongoing care. This event offers a unique […]
8 events found.
Conference
Events
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Holiday Inn, Birmingham
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Genomics in Primary Care: What GPs need to know
ONLINEGenomic medicine has a significant impact within the field of primary care. Generally acting as the gateway to the NHS and specialised services, primary care practitioners are crucial in the […]
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Recommendation Writing Workshop
Edgbaston Park HotelMonday 23rd June 9.30 - 4pm at Edgbaston Park Hotel. LIMITED PLACES - reserve your spot now! Welcome to the IAG2 Face to Face Meeting! Medics for Rare Disease has […]
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Our Voices, Our Stories: Lived Experiences of Genomic Testing
ONLINEGenomic testing is a complex clinical topic, with new developments and discoveries taking place at a rapid rate. Often, we focus predominantly on the clinical and scientific aspects of genomics, […]
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Introduction to Delphi Studies
ONLINEHave you ever heard of a Delphi Study and not quite sure what it entails? Or maybe you have never heard of Delphi? This webinar will be providing training on […]
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RAREsummit25: CamRARE at 10 – Connecting Moments
Wellcome Genome Campus Conference Centre2025 marks a special milestone — CamRARE’s 10th anniversary. A decade of progress. A future of possibilities. Over the past decade, we have championed collaboration, amplified patient voices, and driven […]
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Demystifying the connection between patients and researchers
Kings College London Great Hall, King’s College London – Strand Campus, London, London, United KingdomCo-hosted by Medics for Rare Disease and King’s Health Partners Rare Disease Network 📅 Date: Friday 6 March 2026 ⏰ Time: 12:00 – 16:45 📍 Location: Great Hall, King’s College […]
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European Conference on Rare Diseases & Orphan Products (ECRD 2026)
O2 universum Congress Centre Českomoravská 2345/17, Libeň, Prague, Czech Republic🗓 Date: 2–4 June 2026 📍 Location: Prague & Online 🔗 Register: Sign up here Join EURORDIS‑Rare Diseases Europe for the largest patient‑led rare disease policy event in Europe! Over […]