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Lessons learned from the COVID-19 pandemic: Rare disease health and social care coordination

ONLINE

During times of global disruption, it is often those who are already disadvantaged that are disproportionately affected. Theme 2 of the ARDEnt report highlights this impact on those with rare conditions. Jointly organised with ARDEnt, this webinar will examine how the reduction to healthcare, social services and SEND (special educational needs and disabilities) education has had a devastating impact that […]

The Unusual Suspects: rare disease in everyday medicine

LIVE STREAM

The Unusual Suspects: Rare disease in everyday medicine is returning to The Royal Society of Medicine on 9th February! The M4RD Annual Symposium has been a popular event in the rare disease calendar for many years, allowing healthcare professionals at all levels, trainees and students to come together to learn more about the importance of understanding rare […]

Lessons learned from the COVID-19 pandemic: Clinical trials and drug development in rare disease

ONLINE

This episode refers to theme 3 in the Making The Unseen Seen: Rare disease and lessons learned from the pandemic report and will discuss how safety considerations, travel restrictions, shielding, trial-sites being repurposed to COVID-19 wards, research staff either being called to the front- line or called to replace others who were, have compounded the already […]

Beyond the Student Voice Prize: Continuing your involvement in rare disease

ONLINE

Learn how you can further your interest and get more involved in the world of rare diseases to benefit both yourself and the rare community The Student Voice Prize is delighted to invite you to our virtual rare disease day event 'Beyond the Student Voice Prize;' an opportunity to connect with peers and patient group […]

Online workshop: Understanding access and reimbursement

ONLINE

Getting wider access to drugs for as many patients a possible is a clear priority in the drug development process, especially for patient groups who are working to secure research into and treatments for their rare conditions. However, understanding how to secure access to newly developed treatments is an often-neglected challenge. The processes involved in […]

Understanding Rare Disease: Communicating with Patients

Sign up to learn about the role of communication in rare disease from those affected directly, in an interactive FREE virtual event! About this event The event will kick off with a session from our guest speaker, who will explore the value of effective and sensitive communication skills when it comes to handling complex conditions, […]

The genetics of intellectual disability: Episode 15

LIVE STREAM

This webinar is part of the popular Genetics of webinar series and will provide an interesting update on the genetic origins of intellectual disability, as well as explore what challenges remain in this area.  Our speakers will explore what research is required after a genetic diagnosis of intellectual disability and what families would value the most from the […]

Facing up to the genomic gap: Tackling equality and diversity in genomics on

LIVE STREAM

This webinar is part of the popular Genetics of webinar series and will discuss the challenge of equality and diversity in genomic research and clinical settings and strategies to address this.  Genomic research has traditionally been focused on caucasian populations, which leads to inherent biases in genomic findings translated into clinical research. Underrepresentation of other populations in […]

Young People’s Genomics Café

LIVE STREAM

Are you a young person interested in finding out more about genomics and health, or affected by a rare or genetic condition? Chromosomes! Dr Andrew Fry, Clinical Senior Lecturer in […]