Building NHS healthcare professional awareness resources
Come along to learn more about how your voice can help healthcare professionals learn about rare disease. You will be joined by Kate Tatton-Brown and Alison Pope, Clinical Directors at […]
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First, do no harm: Expert reflections on a rare bone disease
hunterian museumMedics4RareDiseases and FOP Friends, in collaboration with the Hunterian Museum at the Royal College of Surgeons of England, are hosting an evening reception for healthcare professionals, examining the contributions of […]
The Unusual Suspects: Rare Disease in Everyday Medicine 2024
The Royal Society of MedicineThe aim of the meeting is to inform doctors that rare diseases are collectively common and relevant to every medical career. Very different rare diseases face similar challenges, including navigating […]
£10 – £15
Beyond the Student Voice Prize
ONLINEJoin us to celebrate the end of another highly successful Student Voice Prize. This year’s competition saw more entries than ever before from 30 different universities across 18 countries. We are so grateful to the students and patient groups who contributed to this success. This event is an opportunity for us to share these achievements and […]
Galactic Genomes: Exploring the Universe of Rare Diseases
Cambridge University“May the fourth be with you!” Cambridge University Rare Disease Society and Cambridge University Genomic Medicine Society are co-hosting a stellar event in Cambridge on Saturday 4 May. The day […]
ECRD 2024
The Square Venue, BrusselsThe 12th European Conference on Rare Diseases & Orphan Products (ECRD) is recognised globally as the largest, patient-led, rare disease policy-shaping event in which collaborative dialogue, learning and conversation takes […]
Misdiagnosis and surgical uncertainty – A patient’s perspective
Charlotte Cuffe is a CAUK member and her patient story was recently featured in a prestigious global essay competition after she was interviewed by 5th Year Medical Student, Iman Muzafar. […]
Rare Fest 2024
RAREfest24 A festival as unique as you are. For curious minds of all ages, for FREE. Fri 22 November – Launch Evening ‘Strictly Rare’ An evening of music, performance, comedy, […]
Haematology
Alongside the British Society for Haematology this session will discuss management of sickle cell disease and the appropriate use of blood components. It will also explore diagnostic work up for […]