RAREsummit21
ONLINEHear from and engage with a range of stakeholders pioneering change across the rare disease landscape... CRDN's RAREsummit21 is a platform for change. It is the infrastructure that unites patients, […]
Hear from and engage with a range of stakeholders pioneering change across the rare disease landscape... CRDN's RAREsummit21 is a platform for change. It is the infrastructure that unites patients, […]
NORD Rare Diseases and Orphan Products Breakthrough Summit is back on 18 & 19 October 2021 offering a two-day virtual programme. The summit will discuss the latest updates on: rare […]
Join the RSM to reflect on the principles of patient partnership and patient care in this afternoon prize meeting. Dr Bola Owolabi, Director - Health Inequalities NHS England and NHS […]
SAVE THE DATE An opportunity for clinicians and rare disease patient advocacy groups/advocates to come along to a lunchtime webinar with Medscape to hear about their large physician survey on […]
This webinar will provide insights and updates on ophthalmic genetics to ophthalmologists. Specialist speakers will educate delegates on how to order genetic testing, how whole genome sequencing will improve patient […]
This two-day free webinar is composed of a multi-professional faculty reflecting the multi-systemic nature of vasculitis, comprehensive updates on key UKIVAS group activities, and research and clinical updates in the field of vasculitis will be addressed. This webinar is a collaboration between the Nephrology Section of the Royal Society of Medicine and UKIVAS. All specialities […]
Are you affected by a rare condition and from a diverse and marginalised community? If so, join Breaking Down Barriers for their virtual event, to help them understand how health inequalities affect you. People diagnosed with a rare condition, family members, carers, and charity representatives are all welcome to come along and offer support. BDB […]
Join world-renowned experts as they lead exciting discussions exploring the intersection between Artificial Intelligence and Genomic Medicine. Experts leading the panel discussions include Chris Wigley, CEO of Genomics England, Professor […]
This webinar aims to explore the issues and management of risks related to endogamy and consanguinity and will highlight new advances in pre-natal screening protocols. Consanguineous marriage is still practiced […]
The RCGP Northern Ireland Faculty is delighted to be collaborating with the Northern Ireland Rare Disease Partnership (NIRDP) to host a 'Top Tips for Managing Rare Disease in GP' evening. […]