RAREsummit21
ONLINEHear from and engage with a range of stakeholders pioneering change across the rare disease landscape... CRDN's RAREsummit21 is a platform for change. It is the infrastructure that unites patients, […]
Hear from and engage with a range of stakeholders pioneering change across the rare disease landscape... CRDN's RAREsummit21 is a platform for change. It is the infrastructure that unites patients, […]
NORD Rare Diseases and Orphan Products Breakthrough Summit is back on 18 & 19 October 2021 offering a two-day virtual programme. The summit will discuss the latest updates on: rare […]
Join the RSM to reflect on the principles of patient partnership and patient care in this afternoon prize meeting. Dr Bola Owolabi, Director - Health Inequalities NHS England and NHS […]
SAVE THE DATE An opportunity for clinicians and rare disease patient advocacy groups/advocates to come along to a lunchtime webinar with Medscape to hear about their large physician survey on […]
This webinar will provide insights and updates on ophthalmic genetics to ophthalmologists. Specialist speakers will educate delegates on how to order genetic testing, how whole genome sequencing will improve patient […]
This two-day free webinar is composed of a multi-professional faculty reflecting the multi-systemic nature of vasculitis, comprehensive updates on key UKIVAS group activities, and research and clinical updates in the […]
Are you affected by a rare condition and from a diverse and marginalised community? If so, join Breaking Down Barriers for their virtual event, to help them understand how health […]
Join world-renowned experts as they lead exciting discussions exploring the intersection between Artificial Intelligence and Genomic Medicine. Experts leading the panel discussions include Chris Wigley, CEO of Genomics England, Professor […]
This webinar aims to explore the issues and management of risks related to endogamy and consanguinity and will highlight new advances in pre-natal screening protocols. Consanguineous marriage is still practiced […]
The RCGP Northern Ireland Faculty is delighted to be collaborating with the Northern Ireland Rare Disease Partnership (NIRDP) to host a 'Top Tips for Managing Rare Disease in GP' evening. Topics provided aim to help you manage patients with rare disease. The event is hosted by the RCGP Northern Ireland and some aspects may be […]