Diagnosis and Management of Rare Diseases
ONLINEThis FREE live 90-minute webinar will focus on the diagnosis and management of rare diseases, in particular haematological conditions. The fundamentals of a rare disease - what is it? Who […]
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Maximising engagement with healthcare professionals
Join this webinar to explore the practical things patient groups can do to make sure they are engaging with HCPs in the most beneficial way. Most rare diseases are not […]
Free
The International Rare Disease Showcase
ONLINEThe International Rare Disease Showcase is a virtual event like no other, bringing everyone together including, patient groups, researchers, medical professionals, industry representatives and of course patients themselves. Here's what to expect: Three days of interactive sessions led by global experts and advocates Conversations on policy, patient advocacy, access and approval, new technologies, research and data collection with […]
Lessons learned from the COVID-19 pandemic: Diagnostic delay in rare disease
ONLINEThis time last year it became clear to the rare disease community that the COVID-19 pandemic was having a disproportionate and often devastating effect on all aspects of the lives […]
Lessons learned from the COVID-19 pandemic: Rare disease health and social care coordination
ONLINEDuring times of global disruption, it is often those who are already disadvantaged that are disproportionately affected. Theme 2 of the ARDEnt report highlights this impact on those with rare conditions. Jointly organised with ARDEnt, this webinar will examine how the reduction to healthcare, social services and SEND (special educational needs and disabilities) education has had a devastating impact that […]
The Unusual Suspects: rare disease in everyday medicine
LIVE STREAMThe Unusual Suspects: Rare disease in everyday medicine is returning to The Royal Society of Medicine on 9th February! The M4RD Annual Symposium has been a popular event in the rare disease calendar for many years, allowing healthcare professionals at all levels, trainees and students to come together to learn more about the importance of understanding rare […]
Lessons learned from the COVID-19 pandemic: Clinical trials and drug development in rare disease
ONLINEThis episode refers to theme 3 in the Making The Unseen Seen: Rare disease and lessons learned from the pandemic report and will discuss how safety considerations, travel restrictions, shielding, trial-sites being repurposed to COVID-19 wards, research staff either being called to the front- line or called to replace others who were, have compounded the already […]
Lessons learned from the COVID-19 pandemic: Looking to the future with The UK Rare Diseases Framework
ONLINEJointly organised with ARDEnt, this webinar will discuss the recommendations the ARDEnt team is using to help inform how the UK is going to deliver its objectives set out in the UK Rare Diseases Framework, published in January 2021. The webinar panel includes members of ARDEnt and those responsible for overseeing the impact of the Framework […]
Beyond the Student Voice Prize: Continuing your involvement in rare disease
ONLINELearn how you can further your interest and get more involved in the world of rare diseases to benefit both yourself and the rare community The Student Voice Prize is delighted to invite you to our virtual rare disease day event 'Beyond the Student Voice Prize;' an opportunity to connect with peers and patient group […]
Genomics England Research Summit 2022
Business Design Centre 52 Upper Street, London, United KingdomThe Summit is an exciting one-day event that explores the latest research and technology innovations from Genomics England, partners and complementary fields. Through talks, panel discussions, posters and exhibitions across […]