Understanding Health Inequalities Event
ONLINEAre you affected by a rare condition and from a diverse and marginalised community? If so, join Breaking Down Barriers for their virtual event, to help them understand how health […]
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Artificial intelligence in genomic medicine
ONLINEJoin world-renowned experts as they lead exciting discussions exploring the intersection between Artificial Intelligence and Genomic Medicine. Experts leading the panel discussions include Chris Wigley, CEO of Genomics England, Professor Pearse Keane, Professor of Artificial Intelligence Medicine at UCL, Dr Stephen Kingsmore, President and CEO of Rady Children’s Institute for Genomic Medicine, and Professor Mihaela […]
The genetics of consanguinity and inherited risk
ONLINEThis webinar aims to explore the issues and management of risks related to endogamy and consanguinity and will highlight new advances in pre-natal screening protocols. Consanguineous marriage is still practiced […]
Top tips for managing rare disease in GP
ONLINEThe RCGP Northern Ireland Faculty is delighted to be collaborating with the Northern Ireland Rare Disease Partnership (NIRDP) to host a 'Top Tips for Managing Rare Disease in GP' evening. […]
Diagnosis and Management of Rare Diseases
ONLINEThis FREE live 90-minute webinar will focus on the diagnosis and management of rare diseases, in particular haematological conditions. The fundamentals of a rare disease - what is it? Who […]
Maximising engagement with healthcare professionals
Join this webinar to explore the practical things patient groups can do to make sure they are engaging with HCPs in the most beneficial way. Most rare diseases are not […]
Free
The International Rare Disease Showcase
ONLINEThe International Rare Disease Showcase is a virtual event like no other, bringing everyone together including, patient groups, researchers, medical professionals, industry representatives and of course patients themselves. Here's what to expect: Three […]
Lessons learned from the COVID-19 pandemic: Diagnostic delay in rare disease
ONLINEThis time last year it became clear to the rare disease community that the COVID-19 pandemic was having a disproportionate and often devastating effect on all aspects of the lives of those living with rare conditions. To remediate this, a large group of UK-based and cross-sector stakeholders, known as ARDEnt, assembled to ensure the capture […]
Lessons learned from the COVID-19 pandemic: Rare disease health and social care coordination
ONLINEDuring times of global disruption, it is often those who are already disadvantaged that are disproportionately affected. Theme 2 of the ARDEnt report highlights this impact on those with rare conditions. Jointly organised with ARDEnt, this webinar will examine how the reduction to healthcare, social services and SEND (special educational needs and disabilities) education has had a devastating impact that […]
The Unusual Suspects: rare disease in everyday medicine
LIVE STREAMThe Unusual Suspects: Rare disease in everyday medicine is returning to The Royal Society of Medicine on 9th February! The M4RD Annual Symposium has been a popular event in the rare disease calendar for many years, allowing healthcare professionals at all levels, trainees and students to come together to learn more about the importance of understanding rare […]