East Paediatric Genomics Forum
ONLINEPaediatricians and Neonatologists from East of England and East Midlands please join to learn more about the Genomic Medicine Service and the testing services the East Genomics Laboratory Hub provides. […]
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Medicine and Me: Living with pulmonary fibrosis, looking to the future
ONLINEJointly organised with Action for Pulmonary Fibrosis, this meeting will give you an understanding of what it is like to live with Idiopathic Pulmonary Fibrosis (IPF) from people living with the disease. Pulmonary […]
East Paediatric Genomics Forum: Drawing Family Histories like a Pro!
Paediatricians and Neonatologists from East of England and East Midlands are invited to join this event to discuss the taking and drawing of family history with a number of ‘patients’/cases […]
Ensuring inclusive communications around genetics
ONLINEGenetics is complex, and talk of genetics, and even science, can turn many people off from engaging with clinicians or self-management of their conditions. Findacure is teaming up with charity […]
COVID-19 from a Paediatric Perspective: an online BPSU-PHE symposia series
The British Paediatric Surveillance Unit in collaboration with Public Health England will be hosting a symposia series exploring how COVID-19 has impacted on the paediatric service and children and young […]
RCPH-BPSU series: Bechet’s Syndrome in children and young people
ONLINEBehçet’s syndrome is a rare multi-system inflammatory condition characterised by recurrent oral ulceration, genital ulceration, eye and skin involvement. In this webinar, the panel of speakers will present the findings […]
Mobilising pathways to accommodate new transformative treatments – using CF as a case study
ONLINEJoin OPEN HEALTH for a live webinar exploring the journey of RARE pathway transformation and the introduction of disease-modifying treatments as part of their Rare Thoughts and Outcomes series. Learn from the experiences of patients, parents, and physicians about how cystic fibrosis pathways are rapidly adapted and what learnings can be applied to other rare […]
Precision Medicine & Rare Disease
ONLINEIf you work in rare diseases or rare disorders, this conference is one you cannot miss. Come and hear talks and discussions by leaders in academia, biotech, pharmaceuticals, diagnostics, clinical research, informatics, healthcare and regulatory bodies at the world’s most informative virtual conference. Patients living with rare diseases are often persistently misdiagnosed or undiagnosed, potentially […]
RCPH-BPSU series: Type 2 Diabetes in children and young people
ONLINEThere is growing evidence that the increase in childhood obesity has resulted in cases of Type 2 diabetes being diagnosed in younger age groups. Although the incidence of Type 2 diabetes is increasing, the condition is still relatively rare in children, and therefore the symptoms and clinical presentation of it in children may not always […]
Drug Repurposing for Rare Diseases 2021
ONLINEFindacure’s Drug Repurposing for Rare Diseases Conference is back for an eighth year, and this time, it’s gone virtual! Naturally, this year’s conference will be a little different. COVID-19 has […]