Rett UK Regional Professionals Day
THE HUB Easton Street, High Wycombe, Buckinghamshire, United KingdomGreat opportunity to learn more about Rett syndrome and how to support people with the disorder
Great opportunity to learn more about Rett syndrome and how to support people with the disorder
Join Sarah Lippett to celebrate the publication of A Puff of Smoke on the 1st of November 6-9pm at The Centre for Better Health in London.
This event will give you a comprehensive view of the direct to consumer genetic tests available and their implications. Through lectures from renowned specialists as well as lively debates, you will be well informed of the benefits and risks of ancestry and health tests.
Join author and artist Sarah Lippett to explore the power of sequential narrative.
A potpourri of genetic diagnosis, misdiagnosis and learning experiences
Shining the light on Aspergillosis
Medics 4 Rare Diseases and the RSM will bring a faculty of top speakers to explore how rare diseases are relevant in everyday clinical medicine
Findacure's Drug Repurposing for Rare Diseases Conference is returning for its seventh consecutive year!
Jointly organised with Action for Pulmonary Fibrosis, this meeting will give you an understanding of what it is like to live with Idiopathic Pulmonary Fibrosis (IPF) from people living with the disease. Pulmonary fibrosis (PF) is thought to affect around 70,000 people in the UK. One of the most aggressive and common forms of PF is Idiopathic Pulmonary […]
People living with a rare disease have the right to reach their highest potential of well-being; join us online for ECRD 2020 to take part in discussions to inform and build the future ecosystem for rare disease policies and services.