EURORDIS Summer School aims to provide rare disease patient advocates with the knowledge and skills needed to become experts in medicines research and development. Since 2015, researchers are also welcome to attend the Summer School. The EURORDIS Summer School training covers topics including: clinical trials methodology, clinical research, ethics in medicines development, regulatory affairs, health […]
Come together with like minded professionals who have a passion to ensure no one is left behind. Hear from organisations who are leading the way in engaging with our diverse […]
An online event to find out about a nationwide public dialogue on the implications of using whole genome sequencing for newborn screening. One hundred and thirty members of the public from around the UK have taken part in a dialogue about the implications for the NHS and society of using whole genome sequencing for newborn […]
The eleventh webinar in The genetics of… series from the Royal Society of Medicine. This webinar will equip attendees with the clinical skills required to help patients presenting with common genetic situations. Frequent […]