Hosted at the Renaissance Downtown Hotel, the rare disease community will come together in Washington DC for a day of learning, networking and fun! Hear real stories from the community and gain practical knowledge to help you live your best life while navigating your rare disease journey. The living rare forum is your opportunity to […]
On Thursday 4th May 2023 NHS East Genomics will be holding an in-person Showcase event at the Kingsgate Conference Centre, Peterborough. As well as celebrating successes from their transformation projects across a range of cancers, rare diseases and conditions, plus how they are helping to support and develop their local NHS workforce, delegates will also […]
The BPSU is currently planning to hold its yearly Symposium on rare diseases on 18th October 2022 and are in the process of compiling an agenda for the day, which […]
