Understanding Rare Disease: Communicating with Patients
Sign up to learn about the role of communication in rare disease from those affected directly, in an interactive FREE virtual event! About this event The event will kick off […]
Diagnostic odyssey
Syndromes without a name (SWAN)
It’s my first blog post for M4RD and I have been thinking back to when I was first introduced to the field of rare diseases, whilst in Med School. At […]
A Puff of Smoke Book Launch and Exhibition
Join Sarah Lippett to celebrate the publication of A Puff of Smoke on the 1st of November 6-9pm at The Centre for Better Health in London.
Medics4RareDiseases becomes a UK Registered Charity
Medics4RareDiseases registered as a UK charity who’s object is the relief of sickness and preservation of health of those suffering from rare diseases.
The Diagnostic Odyssey – A Mother’s Experience
The diagnostic odyssey is a term used to describe the long and arduous journey that many rare disease patients find themselves on in pursuit of a diagnosis. The charity, Rare […]