The Rare Disease Podcast for Medics: Season 4 Round Up
We’ve now brought Season 4 of The Rare Disease Podcast for Medics to a close and what a season it was! We’ve had some incredible guests and have discovered so […]
M4RD
Look-back – The Unusual Suspects: Rare Disease in Everyday Medicine
February was a busy month for M4RD!! Prior to Rare Disease Day we held our 10th annual symposium, with the Royal Society of Medicine on 15th February – our first […]
Get involved with a research study
Are you a medical student? Are you undertaking work involving rare diseases? Your opinions could be invaluable for a research study looking into rare disease advocacy! What is it for? […]
CMTC – More Than Just a Bruise
by Nadine Jefferies The moments after a baby is born – already a rollercoaster of emotions for any parent –are only amplified if your baby has a rare condition. Lex […]
Advanced Therapies Conference at the ExCel in London by Nadine Jefferies
Hello, Nadine here, I’m back again! This time it’s to talk about rare disease policy. This month I attended Europe’s largest cell and gene therapy exhibition at the ExCel Centre.Among […]
3rd International Conference on Lysosomal Diseases
We are close to our “3rd International Conference on Lysosomal Diseases” which takes place 20-21 April 2023, in London, UK. The conference is offering 35% DISCOUNT on registration fee to students […]
Our time at the European Parliament by Nadine Jefferies
Hello! I’m Nadine, Executive Assistant at Medics4RareDiseases, and I’m thrilled to tell you about my trip to Brussels with CEO Lucy McKay. On the 8th February we visited the European […]
#showyourstripes for Rare Disease Day 2023 Gallery!
Thanks so much to everyone for getting involved with this year’s Rare Disease Day! It’s been amazing how many of you have shown your stripes and they all look fantastic! […]
RSE Network Support Meeting
Rett syndrome is a rare, genetic, neurological disorder affecting mainly females (1:10,000) and very few males. It is present from conception. After a period of ‘near normal’ development, the child […]
M4RD and Medscape Education Join Forces for ITN Rare Disease Film
Medics4RareDiseases is thrilled to partner with Medscape Education, a global education website for medics, to produce a film with ITN. The programme, that will be released on Rare Disease Day […]