Beyond the Diagnosis: Mental Health and Rare Diseases
For millions with rare diseases, the journey to understanding and managing their condition can be as challenging as the diagnosis itself. Rare diseases are more common than many realise – […]
medical education
M4RD’s Rare Diseases 101 Study
Published in the Orphanet Journal of Rare Diseases Medics4RareDiseases is proud to announce another publication within the Orphanet Journal of Rare Diseases! The study evaluates Rare Diseases 101, an online […]
‘First Do No Harm’: Expert Reflections on a Rare Bone Disease’
JOIN US AT THE HUNTERIAN MUSEUM! Join Medics4RareDiseases and FOP Friends for a unique reception, at the prestigious Hunterian Museum, at the Royal College of Surgeons of England on 13th […]
Register now for M4RD’s annual symposium!
Medics4RareDiseases is excited to announce that you can now register for our 11th annual symposium! The Unusual Suspects 2024: Rare Diseases in Everyday Medicine will take place on the afternoon […]
The Dangers of ‘Optimism Bias’
Dr Lauren Ferretti is a paediatric registrar in London with a life-long commitment to charity fundraising and an interest in genetics and whole genome sequencing. Through working with M4RD as […]
Do you #daretothinkrare for Freshers?
We are M4RD and we #daretothinkrare Medics4RareDiseases is a registered charity started by medics, for medics! In fact, M4RD started out as a university society at Barts & The London. […]
Rare Diseases Action Plan – Actions 8 & 9
This is the third instalment of M4RD’s comments on the English Rare Diseases Action Plan. I will now discuss Action 8; Extend the remit of the Genomics Education Programme to […]
Rare Diseases Action Plan Focus on Action 6
In this post Emma will focus on Action 6 of the England Rare Disease Action Plan; develop an innovative digital educational resource. This is the first action listed in the Plan […]
Rare Disease Action Plan 2022 – focus on priority 2, action 7
In my last post I introduced some of M4RD’s initial thoughts on the Rare Diseases Action Plan 2022 Action 6. Now I’d like to continue exploring Priority 2; ‘increasing awareness […]
Understanding rare disease: communicating with patients
M4RD is delighted to announce that we will be hosting an interactive virtual event exclusively for medical students wishing to learn more about complex communication skills. This event is initiated […]