Medics4RareDiseases becomes a UK Registered Charity
Medics4RareDiseases registered as a UK charity who’s object is the relief of sickness and preservation of health of those suffering from rare diseases.
Medics4RareDiseases registered as a UK charity who’s object is the relief of sickness and preservation of health of those suffering from rare diseases.
RAREsummit19 is a 1 day summit focusing on patient centricity in rare disease – mastery, opportunities and trends in the drug development process, healthcare and assistive technologies.
Today is Acromegaly Awareness Day 2018 so take this opportunity to brush up on signs, symptoms and management of this rare disease with a video from Dan Jeffries
Medics4RareDiseases are excited to announce the launch of their new research project: The M4RD Red Flags Survey. The purpose of the survey is to find out what different rare diseases have in common during the time before diagnosis, a period often called ‘the diagnostic odyssey’. We need all UK based patient groups to take part. Read more to find out how…
VIDEO: Dan Jeffries, owner of two rare diseases and author of ‘Me, Myself & Eye’, interviewed M4RD Founder Lucy McKay. Watch the video to hear Dan’s interesting story of being diagnosed during an OSCE and to find out what M4RD is all about from the zebra’s mouth.
Another brilliant Rare Disease Day. This year we rebranded to Medics4RareDiseases!
We are back at The Royal Society of Medicine in London for our annual symposium held in conjunction with the wonderful Genetics Section. We are looking forward to bringing you rare […]