Skip to content

Menu

About M4RD
News
Learn
Resources
- Search
- Browse
- Submit
- M4RD Resources
Events
Get Involved
Contact

Close Menu

Occipital horn syndrome

Screenshot-2021-02-24-at-19.32.42

25th March 2021

I am number 17 campaign

Jo McPherson daretothinkrare, disease, interview, patient, raredisease I am number 17, Occipital horn syndrome, OHS

This week changemaker David Rose speaks with our CEO Lucy about what it is like to live with the ultra-rare disease occipital horn syndrome, advocacy efforts and the I am number 17 […]

Share, Follow and Like

Search Resources

Select category

Case Studies

Factsheets

Have you heard of...?

Journals and Articles

Learning Resources

Medical Institutions

Patient Groups

Rare Disease Guidelines

Speakers

Venues

No results found

Reset

Recent Posts

Attending NORD! (The National Organisation for Rare Diseases) by Agata Oliwa
Beyond the Diagnosis: Mental Health and Rare Diseases
Greetings from the South, Reunions in the ‘North’, and The Power of Yet
M4RD’s Rare Diseases 101 Study
Lunch and Learn look-back by Leah Brooksbank and Corrinne Hepworth

Categories

Categories

Archives

Archives

Medics4RareDiseases Ltd is a Charitable Incorporated Organisation (CIO) registered in England & Wales, Registered Charity Number 1183996. M4RD is registered at Companies House as a private company registered by guarantee without share capital, Company Number 11119884. Our registered address is: c/o Analogue Wonderland, Unit 12 Treadaway Technical Centre, Treadaway Hill, Loudwater, High Wycombe, HP10 9RS.

M4RD is currently funded by donations and company sponsorship with unrestricted grants. M4RD does not endorse any companies or products. M4RD is operated independently from these companies and they have no editorial control over M4RD’s content or activities. To find out more click here.

Please note that M4RD does not provide any clinical services and staff are not able to assist in making a diagnosis or clinical referrals. The information on this website is provided for driving awareness and should not be interpreted as or a substitute for professional medical advice.

Recent Posts

Attending NORD! (The National Organisation for Rare Diseases) by Agata Oliwa
18th November 2024
Beyond the Diagnosis: Mental Health and Rare Diseases
4th November 2024
Greetings from the South, Reunions in the ‘North’, and The Power of Yet
14th October 2024

Tags

Ambassador apply ARDEnt BPSU Cambridge collaboration Conference COVID-19 CRDN daretothinkrare diagnosis Diagnostic odyssey doctor doctor in training doctors in training event events genetics Genomics HCP HCPs job M4RD medical education medical school medical student medicine mystery monday neurofibromatosis patient patient advocacy patient groups Patients rare rare disease rare disease day rare diseases Rare Diseases Action Plan research royal society of medicine rsm symposium team vacancy Vasculitis

This website uses cookies to improve your experience. We'll assume you're ok with this, but you can opt-out if you wish. Cookie settings ACCEPT

Privacy & Cookies Policy

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these cookies, the cookies that are categorized as necessary are stored on your browser as they are as essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may have an effect on your browsing experience.

Necessary

Always Enabled

Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.

SAVE & ACCEPT