patient groups Archives

patient groups

8th April 2022

Online workshop: Understanding access and reimbursement

Jo McPherson Access to treatment, patient groups, rare disease, Reimbursement 0

Getting wider access to drugs for as many patients a possible is a clear priority in the drug development process, especially for patient groups who are working to secure research […]

M4RD International Rare Disease Showcase

3rd November 2021

The International Rare Disease Showcase

Jo McPherson advocates, findacure, patient groups, rare disease, Showcase 0

The International Rare Disease Showcase is a virtual event like no other, bringing everyone together including, patient groups, researchers, medical professionals, industry representatives and of course patients themselves. Here’s what to expect: Three […]

11th June 2021

Working together to share our message #DareToThinkRare

Jo McPherson daretothinkrare, patient, Patient Advocacy Groups, raredisease collaboration, daretothinkrare, patient advocacy, patient advocates, patient groups, Patients

We believe that asking doctors to #DareToThinkRare is fundamental to improving the experience of all patients living with rare diseases. And to eliminating the diagnostic odyssey. Working together to share […]