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patient registry

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15th May 2020

Patient Registry for Bardet-Biedl Syndrome

Jo McPherson daretothinkrare, disease, medicalstudent Bardet-Biedl syndrome, Data, patient registry, rare genetic condition, UCL

We’re working with UCL to find someone to help develop a patient registry for BBS UCL are setting up a professional registry for people in the UK with the rare genetic condition […]

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