#showyourstripes for Rare Disease Day 2023 Gallery!
Thanks so much to everyone for getting involved with this year’s Rare Disease Day! It’s been amazing how many of you have shown your stripes and they all look fantastic! […]
Thanks so much to everyone for getting involved with this year’s Rare Disease Day! It’s been amazing how many of you have shown your stripes and they all look fantastic! […]
Happy Rare Disease Day! We can finally reveal the special segment recorded with Medscape for Rare Disease Day. We would like to thank everyone involved in making this happen, it […]
With my head hung down, trying to hide my morning face away from the scurry of staff hurrying between the shift changeover, I scan the floor for those familiar patterns; […]
Medics4RareDiseases is thrilled to partner with Medscape Education, a global education website for medics, to produce a film with ITN. The programme, that will be released on Rare Disease Day […]
Rare disease day highlights the impact of rare disease on millions of people all around the world. There’s loads of ways you can get involved to support this incredible day, […]
Rare Diseases affect 3.5 million people in the UK. People with rare conditions take an average of FIVE years to reach a diagnosis. They often experience diagnostic delay because healthcare […]
On this rare day take time to listen to a patient story and decide what you will do to make a difference to 300 million people living worldwide with a […]
VIDEO: Dan Jeffries, owner of two rare diseases and author of ‘Me, Myself & Eye’, interviewed M4RD Founder Lucy McKay. Watch the video to hear Dan’s interesting story of being diagnosed during an OSCE and to find out what M4RD is all about from the zebra’s mouth.