The Cambridge Rare Disease Showcase
Join Findacure for the annual Cambridge Rare Disease Showcase – a relaxed and informal networking evening in one of the UK’s most prominent scientific hubs.
rare disease
RAREsummit19
RAREsummit19 is a 1 day summit focusing on patient centricity in rare disease – mastery, opportunities and trends in the drug development process, healthcare and assistive technologies.
Health Horizons: Future Healthcare Forum
CRDN are hosting a Rare Disease session as part of the new Cambridge Biotech Week Health Horizons Forum.Health Horizons is a high calibre, two-day conference focusing on the future of the healthcare industry. Created by the Global Innovation Forum.
The Diagnostic Odyssey – A Mother’s Experience
The diagnostic odyssey is a term used to describe the long and arduous journey that many rare disease patients find themselves on in pursuit of a diagnosis. The charity, Rare […]
BPSU Tea Party
The British Paediatric Surveillance Unit invites you to this year’s event to enjoy afternoon tea and cakes, hear young people speak about their experience of living with rare disease and visit informational stands.
Neurofibromatosis Type 1
The most common of the Neurofibromatoses, Neurofibromatosis Type 1 (NF1) is a condition that leads to tumors growing on nerves alongside effects on other organs. It affects approximately 1 in 2700 births, and can be due to autosomal dominant inheritance from the parents or new mutations in the gene NF1 in the affected child.
Small Vessel Vasculitis
Time for a little Rheumatology revision. In this article Dr Mariam Al-Attar, one of our M4RD Clinical Ambassadors, explains why she’s interested in Rheumatology. Plus you can have a look […]
Winner of Student Voice Essay Competition 2018 to Speak at M4RD’s The Unusual Suspects
The M4RD team were really happy to work with Findacure on The Student Voice Essay Competition once again. This annual competition is a great opportunity to engage the clinicians of the future in the field of rare diseases. It is always so encouraging to read the submitted essays which demonstrate the kind of open-minded approach that we feel is needed when caring for people with rare diseases.
Are you Aware of Acromegaly?
Today is Acromegaly Awareness Day 2018 so take this opportunity to brush up on signs, symptoms and management of this rare disease with a video from Dan Jeffries
The M4RD Red Flags Survey Launches Today!
Medics4RareDiseases are excited to announce the launch of their new research project: The M4RD Red Flags Survey. The purpose of the survey is to find out what different rare diseases have in common during the time before diagnosis, a period often called ‘the diagnostic odyssey’. We need all UK based patient groups to take part. Read more to find out how…