Words Matter by Emily Livesey
Words that hurt It’s 2009 and my body is failing me. I had a flu that I never got over and it has left me weak,nauseous, breathless, and ravenously hungry. […]
royal society of medicine
Register now for M4RD’s annual symposium!
Medics4RareDiseases is excited to announce that you can now register for our 11th annual symposium! The Unusual Suspects 2024: Rare Diseases in Everyday Medicine will take place on the afternoon […]
Look-back – The Unusual Suspects: Rare Disease in Everyday Medicine
February was a busy month for M4RD!! Prior to Rare Disease Day we held our 10th annual symposium, with the Royal Society of Medicine on 15th February – our first […]
The Dangers of ‘Optimism Bias’
Dr Lauren Ferretti is a paediatric registrar in London with a life-long commitment to charity fundraising and an interest in genetics and whole genome sequencing. Through working with M4RD as […]
M4RD: Quarter 1 and Rare Disease Day 2022
Spring is in the air and the team at M4RD have been reflecting on what has been a HUGE first quarter for us. Most notably, we have grown. Melissa, our […]
Lessons learned from the COVID-19 pandemic: Diagnostic delay in rare disease
This time last year it became clear to the rare disease community that the COVID-19 pandemic was having a disproportionate and often devastating effect on all aspects of the lives […]
Lessons learned from the COVID-19 pandemic: Rare disease health and social care coordination
During times of global disruption, it is often those who are already disadvantaged that are disproportionately affected. Theme 2 of the ARDEnt report highlights this impact on those with rare […]
Lessons learned from the COVID-19 pandemic: Clinical trials and drug development in rare disease
This episode refers to theme 3 in the Making The Unseen Seen: Rare disease and lessons learned from the pandemic report and will discuss how safety considerations, travel restrictions, shielding, trial-sites […]
Lessons learned from the COVID-19 pandemic: Looking to the future with The UK Rare Diseases Framework
Jointly organised with ARDEnt, this webinar will discuss the recommendations the ARDEnt team is using to help inform how the UK is going to deliver its objectives set out in the […]
The Unusual Suspects: rare disease in everyday medicine
The Unusual Suspects: Rare disease in everyday medicine is returning to The Royal Society of Medicine on 9th February! The M4RD Annual Symposium has been a popular event in the rare disease […]