UK Rare Disease Framework Archives

26th October 2021

Whose Voice Is It Anyway?

Jo McPherson M4RD, Patient Advocacy Groups, Report, UK Rare Disease Framework M4RD, NHS England & Improvement, NHSE&I, patient voice, RareQOL, UK Rare Disease Framework, WhoseVoice

On Thursday 27 May 2021 Sondra Butterworth, CEO of RareQoL and founder of the #WhoseVoice campaign, and Lucy McKay from M4RD hosted an engagement session on the UK Rare Diseases […]